Welcome to my digital home
Navigating life with Alzheimer's disease
Receiving an Alzheimer's diagnosis in September 2025 changed my life dramatically. My focus today is using that experience to advocate for research, prevention, and acceptance.
I invite you to look around and join my fight against Alzheimer's. I can't do it alone.
Sept 2025
Diagnosed at Duke Neurology
18
Lecanemab infusions completed
2
Substack publications
3
Online stores launched
Where things stand
A new chapter, made possible by others
In September 2025, my life took a significant turn when I received an early-stage Alzheimer's diagnosis from Duke Neurology. That phone call marked the beginning of a new chapter for me and my wonderful wife, Linda. We made quick decisions to start infusion treatments as soon as possible, which meant letting go of our plans to travel and enjoy our golden years together.
Suddenly we faced not just the challenges of my diagnosis but also financial stress, forcing us to close our business in South Carolina. We relocated to Greensboro, North Carolina, so I could be closer to the incredible team at Duke Neurology.
During this time we were deeply touched by the outpouring of support from friends, family, and even kind strangers. Their generous gifts made it possible for me to receive treatment at Duke, and I truly couldn't have done it without them.
As a lifelong entrepreneur, I began to think about how I could continue to contribute despite the challenges posed by Alzheimer's — and how to raise awareness about a condition that affects so many. Over the past six months I've launched two Substack publications, My Alzheimer's Journey and Greg's Alzheimer's Research Report, along with several online stores. I also began working as a paid speaker and presenter, sharing what it means to live through an Alzheimer's diagnosis, navigate uncertainty, and discover courage amid decline.
On the health front, my medical team at Duke recently had to stop my lecanemab infusions due to ongoing side effects. It's been a frustrating journey; despite 18 infusions, I haven't noticed improvement in my cognitive or behavioral symptoms. Linda and I will be meeting with the medical team at the end of August to explore new treatment options.
While my Alzheimer's progresses — affecting my short-term memory, making it hard to maintain a consistent body temperature, with trembling hands and ongoing battles with depression — I remain grateful for the support and friendship I receive from all of you. Thank you for being part of this journey with me.
